Tag Archives: wine

Good friends, good food, good wine

Sometimes you only need one of the above, and sometimes you need all three. Yesterday was a day I needed all three. I didn’t see my breakdown coming. Usually I do. Usually I’m at the end of my rope, exhausted and it’s been building for days. I was not prepared for today. I’ve really reached a point where I comfortable with who I am and who Molly is. There are definitely days that are harder for others, but I understand her, I’m ok with just her being her.

There is however, the “A” word that hangs over us. Austism. There are times when I don’t need a diagnosis, why would it matter? We have the therapies we need, we have support, but we don’t have closure. It’s hard to gain acceptance for something you don’t have. Earlier this week I spoke with a mother of a child with autism and had a rude awakening. She asked very specific behavior questions all which I answered “yes” to. Never once did she hint that Molly was autistic, but I knew these were the same challenges she faced with her child. That was a hard day. No diagnosis also means I can stick my head in the sand and ignore what is often staring me in the face.

I was up half the night with the kids. First half of the night with Molly, second with Charlie. I’ll admit it, I was tired.

I wasn’t prepared for our playdate. In fact, I was underprepared. We were going to a familiar house, with familiar friends, what could go wrong?? We just went a birthday party and Molly didn’t even notice if I was there, she played happily with her school friends. And that is where I failed and that is why her quirkiness left us sitting in a chair crying. We may have gone to a familiar house but not everyone was familiar and Molly, well, she just couldn’t find her place. It was loud, there was a lot going on, she wasn’t quite old enough for the girls and was too much of a girl for the boys and she felt alone. Her inability to survive in the chaos echoed loud and clear into my heart and I wanted to help her, I wanted her to have fun, I didn’t want to be in the same place we always are and I didn’t know what to do. I didn’t bring headphones, I didn’t have a suggestion that was suitable and I couldn’t go bossing around kids to play with her. I hate being in this situation. And while I was trying to hold myself together and figure out what to do next, I had help. I didn’t ask for it, but I got a hug and it was all I needed to break down and start crying. Then I got another pair of arms to hold the crying four year old girl and then I started crying more because it was nice to have help. And it felt great to just be loved.

Then I remembered there was a mom there I had only known for twenty minutes. And then another new mom came through the door. And then I felt slightly silly. They don’t know our struggles, they didn’t realize we had come so far and I was frustrated to be back at the starting point again, but we are all moms and we all struggle so I felt blessed that neither blinked an eye or skipped a beat. We poured ourselves some wine, started munching on some yummy food and I pulled myself together through great conversation.

It warms my heart to know we are both being raised in a community of acceptance and love. (and wine)

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A Week of Thanks

Every November I try to say what I’m thankful for on Facebook on each day of November. I’m not going to lie, we had a tough week this week but I still managed to start out being thankful for my kids today. In the grand scheme of things, they are pretty awesome, quirkiness and all. However, I feel like I had a lot of be thankful for this week and I feel like I should have started out giving thanks earlier than November first. So, I will share here what I was thankful for this week.

1. Yoga. On top of it’s breathing and relaxation techniques, I’m thankful for the flexibility and strength it has given me. Without out, I don’t think I would have been able to wrestle Molly into her car seat, twice, without all that extra bending ability and core stability.

2. Wine. This should go without saying, but I’m extra thankful for the nice people at Bota for putting it in box form. And making that box slightly classier than Franzia.

3. Radio. Nothing drowns out a child kicking and screaming than Top 40. To be honest, I don’t even know what I was listening to, I couldn’t hear it over the screaming.

4. Swedish Fish. I’m thankful to whichever neighbor gave us Swedish Fish in Charlie’s bag on Halloween. That way at every other house when he handed us a Snickers and said “open this” we could give him a fish and subdue him until the next house.

5. Sleep. I cut my coffee intake by half this week and although I feel much better physically and seem to have less brain fog, I can’t sleep. I’m thankful for it and hope it returns soon.

6. Preschool. Especially the aide in Molly’s class that peeled her out of the car kicking and screaming as if it was nothing and she was happy to see her. Let’s face it, we all know she was thinking “oh Jesus” or maybe not since it’s a Christian preschool but I’m sure whatever her thoughts were, they weren’t great. No one could be excited to have that child in that state being handed to them. I’m her mom and I would run the other direction.

So, there you have it. What I am thankful for this week. I wish I could be thankful for Stampy bringing home some food from his happy hour, especially a cheese plate, but I know that won’t happen.

The Lake and The Water Tower

I hate the lake and the water tower. Especially today, after a rough evening home with the kids, I remember why I hate them. The lake and the water tower are 2 things that we pass on the way to OT and these 2 things can make or break our day.

The first time we went to our OT’s office, I had to map to find out where it was. Now, mind you it is a block away from where I worked for 5 years, but I still had to navigate my way there. Of course we went the shortest mileage, but longest time-wise way. It took 3 trips for me to realize there was a faster way. That’s right, 3. 3 trips to realize I was going the wrong way. I obviously need help. In those 3 trips Molly fell in love with a reservoir (the lake) and a water tower that we passed along the way. I suppose in her mind they are significant, but so is a tiny piece of string she finds on the carpet so I try not to actually comprehend her object’s importance. Trip #4 my brain returned and we took the faster, 1/2 mile longer way to therapy and it was a big mistake. HUGE. Molly realized that she hadn’t seen her beloved lake and we were going a different direction and the tears started. Not just any old tears. Full. Blown. Sobbing. She sobbed for 10 minutes then refused to cooperate with her therapist and she persevered about the water tower and the lake. For an hour. A week later for our next appointment she reminded me to go the right way. Now I always go the longer way to OT now and point out like a stark raving lunatic when we see each because God forbid she misses them because she’s distracted by something else.

These 2 things symbolize pretty much everything during our days. The inability to cope with the different and our need to over stress to keep her balanced. Every Monday I have a struggle as we drive our 20 minute drive whether I should point them out or just see what happens. Usually “seeing what happens” means “keeping your cool while your child screams” and a lot of days I just can’t bring myself to do it. After working all morning and having the kids by myself until bedtime, I just can’t add extra stress. Today, I forgot. I actually forgot about them. We were listening to music and I had 50 things running through my mind and I missed the lake. Aaahhhhh…… she didn’t notice! Oh, wait, she did. 2 minutes later she realized that we were passed it and she didn’t see it. The next 10 minutes she bawled. She missed the water tower because she was crying. She cried more. I wondered if I had wine in my purse. I did not.

You can bet on the way home I became that over zealous mom, “LOOK!!! THERE’S THE WATER TOWER!!!!! ARE YOU LOOKING??? LOOK AT THE WATER TOWER!” If I wasn’t seat belted in I probably would’ve done more gesturing and jumping.

And if it’s not a lake, it’s waving to people as they drive away. Or sitting in the exact same spot on the couch. Or brushing teeth before going to the bathroom. Or waiting at the top of the stairs for me to say “good morning” or one of her 10,000 other external rituals that keep her grounded, I have to know them all or face the consequences. I should probably start writing them down. Although chances are, I would never find time to read the list anyway. Instead I’ll just keep dealing with each tantrum and routine as they come in hopes that one day they just might phase out and I can finally breathe a sigh of relief.

Until that day, I will just have to invest in my wine purse.

This is why I drink

Four years ago I had the most adorable baby girl in the whole world. She slept and I would look at her and think, “I can’t believe I created this perfect person” then she would wake up and cry. And cry. And cry. It didn’t end. We paced, we rocked, we sang, we saw doctors and lactation consultants, we did everything and ended up with some reflux medicine and patience. Then I had some wine. Three years ago I had a pretty awesome toddler that was incredibly smart. She also would scream and cry if naps were missed or our day veered off the normal track. One day of fun meant the next day was hell, so I had some wine. Two years ago I had two year old and a newborn. I had some wine. One year ago I had a toddler boy that was learning to walk and climb and three year old that would have upwards of a dozen temper tantrums a day, for various reasons. I had some a lot of wine. Now I have a four year old that has been labeled as a “master manipulator” by more than one mental or otherwise health professional and a two year old that we like to refer to as “the wild card”. So I have some wine. Sometimes it’s after the kids go to bed, sometimes it’s at 11 am, and sometimes is just to keep me from letting my inner Walmart mom out.